Scientists launch Largest-Ever study of mysterious gallstone disease

NCT ID NCT05961826

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study follows 650 children and adults with LPAC syndrome, a rare condition that causes repeated gallstones even after gallbladder removal. Researchers will collect medical history, lab results, and imaging data over 5 years to describe the disease's full range of symptoms and outcomes. Participants complete a quality-of-life questionnaire yearly. No new treatments are tested; the goal is to better understand the disease.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Centre Hospitalier Annecy Genevois

    Annecy, France

  • Centre Hospitalier Intercommunal Aix-Pertuis

    Aix-en-Provence, France

  • Centre Hospitalier Intercommunal de Créteil

    Créteil, France

  • Centre Hospitalier Sud Francilien

    Corbeil-Essonnes, France

  • Centre hospitalier régional d'Orléans

    Orléans, France

  • Hôpital Avicenne

    Bobigny, France

  • Hôpital Beaujon

    Clichy, France

  • Hôpital Charles Nicolle

    Rouen, France

  • Hôpital Civil

    Strasbourg, France

  • Hôpital Claude Huriez

    Lille, France

  • Hôpital Côte de Nacre

    Caen, France

  • Hôpital François Mitterrand

    Dijon, France

  • Hôpital Haut-Lévêque

    Bordeaux, France

  • Hôpital Jean Bernard

    Poitiers, France

  • Hôpital Michallon

    Grenoble, France

  • Hôpital Paul Brousse

    Villejuif, France

  • Hôpital Rangueil

    Toulouse, France

  • Hôpital Robert Debré

    Reims, France

  • Hôpital Saint Camille

    Bry-sur-Marne, France

  • Hôpital Saint-Antoine

    Paris, France

  • Hôpital de la Croix-Rousse

    Lyon, France