Drug trial aims to slow muscle loss in rare genetic disease

NCT ID NCT05397470

Summary

This study tested whether an oral drug called losmapimod could slow the progression of muscle weakness in adults with facioscapulohumeral muscular dystrophy (FSHD). For 48 weeks, 260 participants took either the drug or a placebo pill twice daily. The main goal was to see if the drug helped people maintain their ability to reach and move their arms, a key measure of upper body function in FSHD.

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Contacts and locations

Locations

  • Aarhus Universitetshospital

    Aarhus, 8200, Denmark

  • Fondazione IRCCS Istituto Neurologico Carlo Besta

    Milan, 20133, Italy

  • Fondazione Serena Onlus- Centro Clinico NEMO

    Milan, Lombardy, 20162, Italy

  • Hospital Universitari i Politecnic La Fe

    Valencia, 46026, Spain

  • Hospital Universitario Donostia

    San Sebastián, Guipuzkoa, 20014, Spain

  • Hospital Universitario Vall d'Hebron

    Barcelona, 08035, Spain

  • Institute de Myologie, Groupe Hospitalier Pitié-Salpêtrière

    Paris, 75013, France

  • Kennedy Krieger Institute

    Baltimore, Maryland, 21205, United States

  • LMU Klinikum Ludwig-Maximilians-Universität München

    München, 80336, Germany

  • Leiden University Medical Centre

    Leiden, Southern Holland, 2333 ZA, Netherlands

  • Mayo Clinic

    Rochester, Minnesota, 55905, United States

  • Montreal Neurological Institute and Hospital

    Montreal, Quebec, H3A 2B4, Canada

  • Newcastle upon Tyne NHS Foundation Trust

    Newcastle upon Tyne, NE1 3BZ, United Kingdom

  • Nice University Hospital - CHU Nice

    Nice, PACA, 06001, France

  • Ohio State University Medical Center

    Columbus, Ohio, 43210, United States

  • Radboudumc

    Nijmegen, Gelderland, 9101, Netherlands

  • Rigshospitalet

    Copenhagen, 2100, Denmark

  • The Ottawa Hospital Research Institute

    Ottawa, Ontario, K1Y 4E9, Canada

  • University College of London Hospitals

    London, WC1N 3BG, United Kingdom

  • University Hospital Bonn

    Bonn, 53127, Germany

  • University of Calgary

    Calgary, Alberta, T2N 4Z6, Canada

  • University of California Irvine

    Irvine, California, 92868, United States

  • University of California Los Angeles (UCLA)

    Los Angeles, California, 90095, United States

  • University of Colorado Anschutz Medical Campus

    Aurora, Colorado, 80045, United States

  • University of Florida

    Gainesville, Florida, 32610, United States

  • University of Kansas Medical Center

    Kansas City, Kansas, 66160, United States

  • University of Massachusetts Memorial Medical Center

    Worcester, Massachusetts, 01655, United States

  • University of Rochester Medical Center

    Rochester, New York, 14642, United States

  • University of Utah

    Salt Lake City, Utah, 84132, United States

  • University of Washington Medical Center

    Seattle, Washington, 98195, United States

  • Universitätsklinikum Ulm

    Ulm, 89081, Germany

  • Virginia Commonwealth University

    Richmond, Virginia, 23298, United States

  • Washington University School of Medicine

    St Louis, Missouri, 63110, United States

Conditions

Explore the condition pages connected to this study.