Hope for dravet syndrome: experimental drug moves to Long-Term safety check
NCT ID NCT04740476
First seen Nov 01, 2025 · Last updated May 23, 2026 · Updated 35 times
Summary
This study looks at the long-term safety of an experimental drug called zorevunersen (STK-001) in 60 people with Dravet syndrome who have already taken the drug in earlier studies. Researchers will monitor side effects, seizure frequency, and overall well-being. The goal is to see if repeated doses remain safe and may help control seizures over time.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Ann & Robert H. Lurie Children's Hospital of Chicago
Chicago, Illinois, 60611, United States
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Children's Hospital Colorado
Aurora, Colorado, 80045, United States
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Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, 19104, United States
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Children's National Medical Center
Washington D.C., District of Columbia, 20010, United States
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Cook Children's Medical Center
Fort Worth, Texas, 76104, United States
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Florida Hospital for Children
Orlando, Florida, 32803, United States
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Massachusetts General Hospital
Boston, Massachusetts, 02114, United States
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Mayo Clinic
Rochester, Minnesota, 55905, United States
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Michigan Medicine
Ann Arbor, Michigan, 48109, United States
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MultiCare Health System Institute for Research and Innovation
Tacoma, Washington, 98405, United States
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NYU Comprehensive Epilepsy Center
New York, New York, 10016, United States
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Nicklaus Children's Hospital
Miami, Florida, 33155, United States
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Oregon Health & Science University
Portland, Oregon, 97239, United States
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Seattle Children's Hospital
Seattle, Washington, 98105, United States
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UT LeBonheur Pediatric Specialists, Inc.
Memphis, Tennessee, 38103, United States
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University of California San Francisco Medical Center
San Francisco, California, 94158, United States
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University of Iowa Children's Hospital
Iowa City, Iowa, 52242, United States
Conditions
Explore the condition pages connected to this study.