New study tracks Real-World safety of hATTR-PN drug TEGSEDI
NCT ID NCT04850105
First seen Sep 30, 2025 · Last updated May 02, 2026 · Updated 25 times
Summary
This study follows 240 adults with hereditary transthyretin amyloidosis with polyneuropathy (hATTR-PN) to monitor the long-term safety of the drug TEGSEDI. Researchers will compare patients who have taken TEGSEDI with those who have not, focusing on risks like low platelet counts. The goal is to better understand the drug's safety in everyday medical practice.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Study Center
RECRUITINGLille, Cedex, 59037, France
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Study Center
RECRUITINGNice, Romaine, 06001, France
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Study Center
RECRUITINGHeidelberg, 69120, Germany
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Study Center
RECRUITINGAthens, 115 28, Greece
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Study Center
RECRUITINGAthens, 11528, Greece
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Study Center
RECRUITINGHeraklion, 71500, Greece
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Study Center
RECRUITINGBologna, 40139, Italy
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Study Center
RECRUITINGGenova, 16132, Italy
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Study Center
RECRUITINGMessina, 98125, Italy
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Study Center
RECRUITINGMilan, 20133, Italy
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Study Center
RECRUITINGNaples, 80131, Italy
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Study Center
RECRUITINGPavia, 27100, Italy
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Study Center
RECRUITINGRoma, 00133, Italy
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Study Center
RECRUITINGRoma, 00168, Italy
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Study Center
RECRUITINGLisbon, 1649 035, Portugal
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Study Center
RECRUITINGHuelva, Andalusia, 21005, Spain
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Study Center
RECRUITINGPalma de Mallorca, Balearic Islands, 07198, Spain
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Study Center
RECRUITINGMadrid, 28041, Spain
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Study Centre
RECRUITINGSofia, 1431, Bulgaria
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Study Centre
RECRUITINGÉgkomi, Nicosia, 2371, Cyprus
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Study Centre
RECRUITINGNantes, 44093, France
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Study Centre
RECRUITINGRoma, Rome, 00189, Italy
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Study Centre
RECRUITINGOviedo, Avenida de Roma, 33011, Spain
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Study Centre
RECRUITINGVillarreal, Barcelona, 08036, Spain
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Study Centre
RECRUITINGBarcelona, Catalonia, 08035, Spain
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Study Centre
RECRUITINGMadrid, Madrid, 28040, Spain
Conditions
Explore the condition pages connected to this study.