Researchers track safety of rare disease drug in babies

NCT ID NCT06192576

First seen Nov 01, 2025 · Last updated May 15, 2026 · Updated 29 times

Summary

This study follows up to 10 children under 2 years old who are already receiving olipudase alfa for acid sphingomyelinase deficiency (ASMD). The goal is to monitor long-term safety and whether the body develops antibodies against the drug. No new treatment is given; researchers simply collect data during routine care for up to 3 years.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Ann and Robert H Lurie Children's Hospital of Chicago- Site Number: 001002

    RECRUITING

    Chicago, Illinois, 60611, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Children's Hospital Medical Center- Site Number: 001003

    RECRUITING

    Cincinnati, Ohio, 45229-3039, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Dell Children's Medical Center- Site Number : 1001-2

    RECRUITING

    Austin, Texas, 78723, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Nationwide Children's Hospital - PIN- Site Number : 1001-1

    RECRUITING

    Columbus, Ohio, 43205-2664, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Pulse InfoFrame US Inc.- Site Number: 001001

    RECRUITING

    Philadelphia, Pennsylvania, 19104, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

Conditions

Explore the condition pages connected to this study.