New hope for rare immune disorder: long-term drug safety trial now recruiting

NCT ID NCT06990529

First seen Feb 18, 2026 · Last updated May 12, 2026 · Updated 13 times

Summary

This study looks at the long-term safety of a drug called leniolisib for people with primary immunodeficiency disorders linked to PI3K signaling. It is for patients who were in a previous leniolisib study. The goal is to see if the drug remains safe and helps control immune problems over time.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for PIDS LINKED TO PI3K are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Locations

  • IIS La Fe

    RECRUITING

    Valencia, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Lahey Hospital & Medical Center

    RECRUITING

    Burlington, Massachusetts, 01805, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Mount Sinai Hospital

    RECRUITING

    New York, New York, 10029, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • National Institute of Health

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.