Gene therapy for hemophilia b: tracking Long-Term results in 500 patients
NCT ID NCT06008938
Summary
This study follows 500 people with hemophilia B who have received HEMGENIX gene therapy to understand its long-term effectiveness and safety. Researchers will track how many bleeding episodes patients experience and compare results to those receiving standard preventive treatments. The goal is to gather real-world evidence about how well this one-time gene therapy controls bleeding over many years.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Aarhus Universitetshospital
RECRUITINGÅrhus N, Denmark
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American Thrombosis and Hemostasis Network
RECRUITINGRochester, New York, 14604, United States
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CHU Nancy - Hôpital Brabois
RECRUITINGVandœuvre-lès-Nancy, France
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Centre Hospitalier Universitaire de Brest / CHU Morvan
RECRUITINGBrest, France
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Centre Régional de Traitement de l'Hémophilie
RECRUITINGNantes, France
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Hannover Medical School
RECRUITINGHanover, Germany
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Hospital Alvaro Cunqueiro Dr. Manuel Rodriquez-Lopez
RECRUITINGVigo, Spain
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Klinik für Angiologie/ Hämostaseologie
RECRUITINGBerlin, Germany
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Klinikum der Johann-Wolfgang Goethe Universitaet
RECRUITINGFrankfurt, Germany
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Medical University Vienna
RECRUITINGVienna, Austria
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University Hospital Bern Inselspital
RECRUITINGBern, Switzerland
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University of Clinic Bonn
RECRUITINGBonn, Germany
Conditions
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