New registry to monitor Long-Term effects of MG drugs in 500 patients

NCT ID NCT04202341

Recruiting now Knowledge-focused Sponsor: Alexion Pharmaceuticals, Inc. Source: ClinicalTrials.gov ↗

First seen Nov 06, 2025 · Last updated May 15, 2026 · Updated 26 times

Summary

This study is a long-term registry that will follow about 500 people with generalized myasthenia gravis (gMG) who are taking or have taken C5 inhibitor drugs like Soliris or Ultomiris. Researchers will collect information on safety and how well the drugs help with daily activities over time. The goal is to better understand the real-world benefits and risks of these treatments.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

Clincal Trial Site
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Gainesville, Florida, 32608, United States
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Birmingham, Alabama, 35294, United States
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Scottsdale, Arizona, 85251, United States
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Fresno, California, 93710, United States
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Orange, California, 92868, United States
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Rancho Mirage, California, 92270, United States
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Sylmar, California, 91342, United States
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Colorado Springs, Colorado, 80907, United States
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Fort Collins, Colorado, 80528, United States
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New Haven, Connecticut, 06520, United States
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Washington D.C., District of Columbia, 10010, United States
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Clearwater, Florida, 33761, United States
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Jacksonville, Florida, 32209, United States
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Tampa, Florida, 33612, United States
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Augusta, Georgia, 30912, United States
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Iowa City, Iowa, 52242, United States
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Lexington, Kentucky, 40503, United States
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Boston, Massachusetts, 02215, United States
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Lansing, Michigan, 48824, United States
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Columbia, Missouri, 65212, United States
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New Hyde Park, New York, 11042, United States
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Chapel Hill, North Carolina, 27599, United States
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Charlotte, North Carolina, 28207, United States
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Durham, North Carolina, 27705, United States
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Dayton, Ohio, 45459, United States
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Philadelphia, Pennsylvania, 19104, United States
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Chattanooga, Tennessee, 37403, United States
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Knoxville, Tennessee, 37920, United States
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Dallas, Texas, 75206, United States
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Houston, Texas, 77030, United States
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Burlington, Vermont, 05401, United States
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Milwaukee, Wisconsin, 53215, United States
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Vienna, 1090, Austria
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Brampton, Ontario, L6R 3J7, Canada
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London, Ontario, N6A 5A5, Canada
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Montreal, Quebec, H2X 3E4, Canada
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Chengdu, Sichuan, 610041, China
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Beijing, 100730, China
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Changchun, 130021, China
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Chengdu, 610072, China
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Guangzhou, 510080, China
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Jinan, 250021, China
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Nanchang, 330006, China
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Qingdao, 266003, China
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Shijiazhuang, 050000, China
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Hanover, Hannover, 30625, Germany
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Milan, 20133, Italy
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Naples, 80138, Italy
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Abhā, 62523, Saudi Arabia
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Jeddah, 22384, Saudi Arabia
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Riyadh, 14611, Saudi Arabia

Conditions

Explore the condition pages connected to this study.

GENERALIZED MYASTHENIA GRAVIS