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New registry to monitor Long-Term effects of C5 inhibitors in myasthenia gravis

NCT ID NCT04202341

Recruiting now Knowledge-focused Sponsor: Alexion Pharmaceuticals, Inc. Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is a long-term, global registry that follows 500 people with generalized myasthenia gravis who are taking or have taken C5 inhibitor drugs like Soliris or Ultomiris. The goal is to collect real-world data on safety and how well the treatment helps with daily activities over time. Participants must have a confirmed diagnosis and some historical medical records available. No new treatments are given; this is purely observational.

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Conditions

The condition(s) this trial relates to.

myasthenia gravis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

GENERALIZED MYASTHENIA GRAVIS

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Clincal Trial Site

    RECRUITING

    Gainesville, Florida, 32608, United States

  • Clinical Trial Site

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    Birmingham, Alabama, 35294, United States

  • Clinical Trial Site

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    Scottsdale, Arizona, 85251, United States

  • Clinical Trial Site

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    Fresno, California, 93710, United States

  • Clinical Trial Site

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    Orange, California, 92868, United States

  • Clinical Trial Site

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    Rancho Mirage, California, 92270, United States

  • Clinical Trial Site

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    Sylmar, California, 91342, United States

  • Clinical Trial Site

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    Colorado Springs, Colorado, 80907, United States

  • Clinical Trial Site

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    Fort Collins, Colorado, 80528, United States

  • Clinical Trial Site

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    New Haven, Connecticut, 06520, United States

  • Clinical Trial Site

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    Washington D.C., District of Columbia, 10010, United States

  • Clinical Trial Site

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    Clearwater, Florida, 33761, United States

  • Clinical Trial Site

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    Jacksonville, Florida, 32209, United States

  • Clinical Trial Site

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    Tampa, Florida, 33612, United States

  • Clinical Trial Site

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    Augusta, Georgia, 30912, United States

  • Clinical Trial Site

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    Iowa City, Iowa, 52242, United States

  • Clinical Trial Site

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    Lexington, Kentucky, 40503, United States

  • Clinical Trial Site

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    Boston, Massachusetts, 02215, United States

  • Clinical Trial Site

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    Lansing, Michigan, 48824, United States

  • Clinical Trial Site

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    Columbia, Missouri, 65212, United States

  • Clinical Trial Site

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    New Hyde Park, New York, 11042, United States

  • Clinical Trial Site

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    Chapel Hill, North Carolina, 27599, United States

  • Clinical Trial Site

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    Charlotte, North Carolina, 28207, United States

  • Clinical Trial Site

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    Durham, North Carolina, 27705, United States

  • Clinical Trial Site

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    Dayton, Ohio, 45459, United States

  • Clinical Trial Site

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    Philadelphia, Pennsylvania, 19104, United States

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    Chattanooga, Tennessee, 37403, United States

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    Knoxville, Tennessee, 37920, United States

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    Dallas, Texas, 75206, United States

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    Houston, Texas, 77030, United States

  • Clinical Trial Site

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    Burlington, Vermont, 05401, United States

  • Clinical Trial Site

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    Milwaukee, Wisconsin, 53215, United States

  • Clinical Trial Site

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    Vienna, 1090, Austria

  • Clinical Trial Site

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    Brampton, Ontario, L6R 3J7, Canada

  • Clinical Trial Site

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    London, Ontario, N6A 5A5, Canada

  • Clinical Trial Site

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    Montreal, Quebec, H2X 3E4, Canada

  • Clinical Trial Site

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    Chengdu, Sichuan, 610041, China

  • Clinical Trial Site

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    Beijing, 100730, China

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    Changchun, 130021, China

  • Clinical Trial Site

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    Chengdu, 610072, China

  • Clinical Trial Site

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    Guangzhou, 510080, China

  • Clinical Trial Site

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    Jinan, 250021, China

  • Clinical Trial Site

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    Nanchang, 330006, China

  • Clinical Trial Site

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    Qingdao, 266003, China

  • Clinical Trial Site

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    Shijiazhuang, 050000, China

  • Clinical Trial Site

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    Hanover, Hannover, 30625, Germany

  • Clinical Trial Site

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    Milan, 20133, Italy

  • Clinical Trial Site

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    Naples, 80138, Italy

  • Clinical Trial Site

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    Abhā, 62523, Saudi Arabia

  • Clinical Trial Site

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    Jeddah, 22384, Saudi Arabia

  • Clinical Trial Site

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    Riyadh, 14611, Saudi Arabia

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