15-Year watch: tracking gene Therapy's lasting impact on blood disorders

NCT ID NCT05145062

Summary

This study is tracking the long-term safety and effectiveness of two gene therapies (BIVV003 and ST-400) for up to 15 years. It follows 8 people who have already received these treatments for severe sickle cell disease or transfusion-dependent beta-thalassemia. The main goal is to see if the therapies remain safe and continue to control the diseases over a very long period.

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Contacts and locations

Locations

  • Boston Children's Hospital

    Boston, Massachusetts, 02115, United States

  • Children's Healthcare of Atlanta

    Atlanta, Georgia, 30329, United States

  • Henry Ford Health System

    Detroit, Michigan, 48202, United States

  • Karmanos Cancer Institute

    Detroit, Michigan, 48201, United States

  • UCSF Benioff Children's Hospital

    Oakland, California, 94609, United States

  • University of California Davis Health System

    Sacramento, California, 95817, United States

  • University of Minnesota

    Minneapolis, Minnesota, 55455, United States

Conditions

Explore the condition pages connected to this study.