Fabry disease treatment faces Long-Term safety check
NCT ID NCT03737214
Summary
This study follows adults with Fabry disease who previously took lucerastat in an earlier trial. Researchers want to understand the long-term safety and side effects of continuing this oral medication. The study will monitor participants for up to 8 years or until the drug becomes commercially available.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Baylore University Medical Center
Dallas, Texas, 75246, United States
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Children's Hospital Research Institute of Manitoba
Winnipeg, R3E 3P4, Canada
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Clinic of Immunological Diseases and Blood Coagulability Cracow University Hospital
Krakow, 31-066, Poland
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Greenwood Genetics Center
Greenville, South Carolina, 29605, United States
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Haukeland University Hospital
Bergen, 5021, Norway
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Hospital Academisch Medisch Centrum - Department of Internal Medicine, Div. Endrocrinology and Metabolism
Amsterdam, 1105 AZ, Netherlands
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Hospital Quironsalud Zaragoza
Zaragoza, 50012, Spain
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Hospital Universitari de Bellvitge / Nephrology Dpt
Barcelona, 08907, Spain
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Hospital Universitario Ramon y Cajal. Servicio de Medicina Interna
Madrid, 28034, Spain
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Infusion Associates
Grand Rapids, Michigan, 49525, United States
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London Health Sciences CTR, Victoria Hospital
London, N6A 5W9, Canada
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Lysosomal and Rare Disorders Research and Treatment Center, Inc.
Fairfax, Virginia, 22030, United States
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Massachusetts General Hospital
Boston, Massachusetts, 02114, United States
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Medizinische Universität Wien, Universitätsklinik für Innere Medizin III, Klinische Abteilung für Nephrologie und Dialyse
Vienna, 1090, Austria
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Narodowy Instytut Kardiologii Stefana kardynała Wyszyńskiego - Państwowy Instytut Badawczy
Warsaw, 04-628, Poland
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National Hospital for Neurology and Neurosurgery
London, WC1N 3BG, United Kingdom
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Nephrologicum Markgräflerland MVZ GmbH
Müllheim, 79379, Germany
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Psychiatrische Universitätsklinik Zürich
Zurich, 8032, Switzerland
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Raymond Poincaré Hosp - Med Genetics Dept
Garches, 92380, France
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Renal Disease Research Institute LLC
Dallas, Texas, 75204, United States
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Research Center, Hôpital du Sacré-Coeur de Montréal
Montreal, H4J 1C5, Canada
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Royal Free London NHS Foundation Trust Lysosomal Storage Disorder Unit; Department of Hematology
London, NW3 2QG, United Kingdom
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Royal Melbourne Hospital - Department of Nephrology
Parkville, 3050, Australia
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Royal Perth Hospital, Department of Nephrology
Perth, Perth, 6000, Australia
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Rush University Medical Center - Dept of Pediatrics
Chicago, Illinois, 60612, United States
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Salford Hospital
Manchester, M6 8HD, United Kingdom
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SphinCS GmbH
Höchheim, 65239, Germany
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The Children's Memorial Health Institute, Department of Pediatric, Nutrition and Metabolic Diseases
Warsaw, 04-730, Poland
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UCSF Benioff Children's Hospital Oakland
Oakland, California, 94609, United States
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University Hospital Gasthuisberg, Leuven (UZ Leuven)
Leuven, 3000, Belgium
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University Hospital Ghent (UZ Ghent)
Ghent, 9000, Belgium
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University of Alabama at Birmingham - Nephrology Research Clinic
Birmingham, Alabama, 35294, United States
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University of Calgary - Heritage Medical Research Clinic
Calgary, T2N 4Z6, Canada
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University of California Irvine
Irvine, California, 92697, United States
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University of Florida Clinical and Translational Science Institute, UF Clinical Research Center
Gainesville, Florida, 32610, United States
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University of Iowa Stead Family Children's Hospital - Division of Medical Genetics
Iowa City, Iowa, 52242, United States
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University of Pennsylvania - Dept of Medicine
Philadelphia, Pennsylvania, 19104, United States
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University of Utah - Division of Medical Genetics, Clinical Genetics Research
Salt Lake City, Utah, 84108, United States
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Universitätsklinikum Würzburg
Würzburg, 97080, Germany
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Universitätsmedizin Berlin - Charité Campus Mitte
Berlin, 10117, Germany
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Vall d'Hebron University Hospital - Unit of Inherited Metabolic Disorders and Rare Diseases
Barcelona, 08035, Spain
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Vancouver General Hospital - Adult Metabolic Diseases Clinic
Vancouver, V5Z 1M9, Canada
Conditions
Explore the condition pages connected to this study.