Study withdrawn before launch: planned research to map rare muscle disease
NCT ID NCT06210672
Summary
This study aimed to track how a rare genetic muscle disease (LGMDR5) changes over two years in patients aged 6 to 35. It planned to measure walking, arm function, breathing, and muscle health to better understand the disease. The goal was to gather information to help design future treatment trials, but the study was withdrawn before any participants were enrolled.
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Contacts and locations
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Locations
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Hedi Chaker Hospital Child Neurology Department
Sfax, Tunisia
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Hopital Raymond Poincare
Garches, 92380, France
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National Institute Mongi Ben Hmida of Neurology
Tunis, Tunisia
Conditions
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