Groundbreaking effort to map the journey of devastating rare brain diseases
NCT ID NCT03639285
Summary
This study aims to better understand a group of rare, inherited brain disorders called leukodystrophies. Researchers will follow 600 patients over time to learn how these diseases progress, improve diagnostic methods, and identify complications. The goal is to gather knowledge that can lead to better care and future treatments for affected individuals and families.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Primary Children's Hospital
RECRUITINGSalt Lake City, Utah, 84113, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.