New hope for kids with rare immune disease: drug targets root cause

NCT ID NCT05438407

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tests a drug called leniolisib in children aged 4 to 11 with APDS, a rare genetic condition that causes a faulty immune system. The goal is to see if the drug is safe and can control the disease by blocking an overactive immune signal. About 15 children will take the drug and be monitored for side effects and improvements.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Children's Healthcare of Atlanta

    Atlanta, Georgia, 30322, United States

  • Institute of Science Tokyo Hospital

    Tokyo, 113-8519, Japan

  • Kyoto University Hospital

    Kyoto, 606-8507, Japan

  • National Institutes of Health

    Bethesda, Maryland, 20814, United States

  • Necker Hospital Paris

    Paris, 75015, France

  • Stanford University

    Standford, California, 94305-5366, United States

  • University of California Los Angeles

    Los Angeles, California, 90095, United States

More trials for these conditions

Other studies related to the condition(s) this trial covers.