Global trial aims to tame rare childhood disease

NCT ID NCT02205762

First seen Apr 18, 2026 · Last updated May 12, 2026 · Updated 6 times

Summary

This study tests different treatment plans for children under 18 with Langerhans cell histiocytosis, a rare disease where immune cells form tumors. The goal is to control the disease, prevent it from coming back, and reduce long-term problems like hormone issues or nerve damage. About 1,400 children worldwide are taking part.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for LANGERHANS CELL HISTIOCYTOSIS are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Locations

  • Akron Children's Hospital

    Akron, Ohio, 44308, United States

  • American Family Children's Hospital University of Wisconsin

    Madison, Wisconsin, 53792, United States

  • Ann & Robert H. Lurie Children's Hospital of Chicago

    Chicago, Illinois, 60611-2991, United States

  • Arkansas Children's Hospital

    Little Rock, Arkansas, 72202, United States

  • Carolinas Medical Center, Levine Children's Hospital

    Charlotte, North Carolina, 28203, United States

  • Children's Healthcare of Atlanta, Emory

    Atlanta, Georgia, 30342, United States

  • Children's Hospital at Montefiore

    The Bronx, New York, 10467, United States

  • Children's Hospital of Los Angeles

    Los Angeles, California, 90027, United States

  • Children's Hospital of Orange County

    Orange, California, 92868, United States

  • Children's Medical Center Dallas, UT Southwestern

    Dallas, Texas, 75235, United States

  • Children's Mercy Hospitals

    Kansas City, Kansas, 64108, United States

  • Children's Minnesota

    Minneapolis, Minnesota, 55404, United States

  • Children's National Medical Center

    Washington D.C., District of Columbia, 20010, United States

  • Children's of Alabama

    Birmingham, Alabama, 35233, United States

  • Cincinnati Children's Hospital Medical Center

    Cincinnati, Ohio, 45229, United States

  • Cohen Children's Medical Center

    New Hyde Park, New York, 11040, United States

  • Columbia University / Herbert Irving Cancer Center

    New York, New York, 10032, United States

  • Connecticut Children's Medical Center

    Hartford, Connecticut, 06106, United States

  • Dana Farber Cancer Institute

    Boston, Massachusetts, 02115, United States

  • Greenville Health System BI-LO Charities Children's Cancer Center

    Greenville, South Carolina, 29605, United States

  • Hackensack University Medical Center

    Hackensack, New Jersey, 07601, United States

  • Johns Hopkins All Children's Hospital

    St. Petersburg, Florida, 33701, United States

  • Johns Hopkins University

    Baltimore, Maryland, 21287, United States

  • Madigan Army Medical Center

    Tacoma, Washington, 98431, United States

  • Massachusetts General Hospital

    Boston, Massachusetts, 02114, United States

  • Medical University of South Carolina (MUSC)

    Charleston, South Carolina, 29425, United States

  • Memorial Sloan Kettering Cancer Center

    New York, New York, 10170, United States

  • Mount Sinai Hospital

    New York, New York, 10029, United States

  • Phoenix Children's Hospital

    Phoenix, Arizona, 85006, United States

  • Providence Sacred Heart Children's Hospital

    Spokane, Washington, 99204, United States

  • Rainbow Babies & Children's Hospital, University Hospitals

    Cleveland, Ohio, 44106, United States

  • Riley Hospital for Children - Indiana University

    Indianapolis, Indiana, 46202, United States

  • Russell J Ebeid Children's Hospital (Promedica)

    Toledo, Ohio, 43606, United States

  • SUNY Upstate Medical University

    Syracuse, New York, 13210, United States

  • St. Jude Children's Research Hospital

    Memphis, Tennessee, 38105, United States

  • UCSF Benioff Children's Hospital of Oakland

    Oakland, California, 94609, United States

  • UCSF Helen Diller Family Cancer Center

    San Francisco, California, 94158-0106, United States

  • UPMC Children's Hospital of Pittsburgh

    Pittsburgh, Pennsylvania, 15224, United States

  • University of Kentucky A.B.Chandler Medical Center

    Lexington, Kentucky, 40536, United States

  • University of Louisville, Norton Children's Hospital

    Louisville, Kentucky, 40202, United States

  • Valley Children's Healthcare

    Madera, California, 93636, United States

  • Vanderbilt-Ingram Cancer Center

    Nashville, Tennessee, 37232, United States

Conditions

Explore the condition pages connected to this study.