Scientists launch major study to unravel mysterious lung disease in women

NCT ID NCT00001465

First seen Nov 01, 2025 · Last updated May 14, 2026 · Updated 25 times

Summary

This study is for women with lymphangioleiomyomatosis (LAM), a rare lung disease that mainly affects young women. Researchers want to understand how the disease destroys lung tissue at the cellular and genetic level. Up to 2000 participants will help scientists identify the proteins and genes involved, with the goal of developing better treatments in the future.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

Conditions

Explore the condition pages connected to this study.