Families reveal hidden costs of rare childhood brain disorder treatment
NCT ID NCT06818656
Summary
This study surveyed families about the financial and quality of life impacts of IVIG treatment for PANS/PANDAS, rare neuropsychiatric conditions in children. Researchers collected information from 65 U.S. participants who either received IVIG treatment or considered it. The goal was to understand how treatment costs affect families' finances, work, and children's school attendance.
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Contacts and locations
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Locations
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Brain Inflammation Collaborative
Delafield, Wisconsin, 53018, United States
Conditions
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