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A nationwide effort to map a rare blood Cancer's toll

NCT ID NCT02808858

Knowledge-focused Sponsor: Fondazione Italiana Sindromi Mielodisplastiche-ETS Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Sep 04, 2026 · Last updated Sep 04, 2026

Summary

Researchers in Italy are building a large registry of adults newly diagnosed with myelodysplastic syndromes, a group of blood cancers where the bone marrow does not make enough healthy blood cells. The study will collect data on up to 10,000 people to measure how many new cases occur each year, how long people live after diagnosis, and how the disease responds to different treatments. The goal is to create a detailed picture of these diseases in real-world patients, which could help doctors and health systems plan better care.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
This registry could sharpen understanding of how common myelodysplastic syndromes are in Italy and how patients fare over time, which may guide better care and resource planning.
What could go wrong
Because this is an observational registry, it cannot test any treatment. Data quality depends on consistent reporting across many centers, and results may not apply beyond the enrolled population.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 10,000 people

The number the study aims to enrol. It can still change while the study runs.

Started

Sep 2013

Expected to finish

May 2032

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Patient with new diagnosis of MDS

Ages

18 to 106 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * New diagnosis of MDS Exclusion Criteria: * Patient who refuse the signature of informed consent

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Conditions

The condition(s) this trial relates to.

myelodysplastic syndrome myelodysplastic/myeloproliferative disease myelodysplastic/myeloproliferative neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Myelodysplastic-myeloproliferative diseases

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    20 sites. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • AOU San Salvatore

    RECRUITING

    Pesaro, 61122, Italy

  • Azienda Ospedaliera Perugia

    RECRUITING

    Perugia, Italy

  • Azienda Ospedaliera di Padova

    RECRUITING

    Padova, 35128, Italy

  • Cattedra di Ematologia Policlino Careggi

    RECRUITING

    Florence, 50134, Italy

  • Clinica di Ematologia, AOU Ospedale di Torrette

    RECRUITING

    Ancona, AN, 60020, Italy

  • Dipartimento Emato-Oncologia AOU San Martino Genova

    RECRUITING

    Genova, 16132, Italy

  • Divisione di Ematologia-Ospedale Cardinale Panico

    RECRUITING

    Tricase, 73039, Italy

  • Ematologia AOU Policlinico di Bari

    RECRUITING

    Bari, 70124, Italy

  • Ematologia e Centro Trapianti, Centro di Riferimento Oncologico della Basilicata

    RECRUITING

    Rionero in Vulture, PZ, 85028, Italy

  • Ematologia, AO SS. Antonio e Biagio

    RECRUITING

    Alessandria, AL, 15121, Italy

  • Ematologia- Ospedale Businco

    RECRUITING

    Cagliari, 09121, Italy

  • FPO - IRCCS di Candiolo

    RECRUITING

    Candiolo, Torino, 10060, Italy

  • Istituto di Ematologia e Oncologia Medica, Policlinico S.Orsola

    RECRUITING

    Bologna, 40100, Italy

  • Medicina interna II Divisione di Ematologia Ospedale S.Luigi Gonzaga

    RECRUITING

    Orbassano, 10043, Italy

  • Ospedale Cardinal Massaia

    RECRUITING

    Asti, Italy

  • Ospedale Maggiore

    RECRUITING

    Chieri, Italy

  • Ospedale San Giovanbni Battista-Molinette

    RECRUITING

    Torino, Italy

  • S.C.D.U. Ematologia e Terapie cellulari, Ospedale Mauriziano

    RECRUITING

    Torino, TO, 10128, Italy

  • Struttura Cattedra di Ematologia e CTMO, AOU di Parma

    RECRUITING

    Parma, PR, 43100, Italy

  • U.O. Clinica Medicina Interna, IRCCS San Martino IST

    RECRUITING

    Genova, GE, 16132, Italy

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