Italian registry maps the Real-World impact of angelman syndrome
NCT ID NCT03650569
Summary
This project created a national registry to collect health and behavioral information from people in Italy diagnosed with Angelman Syndrome. It did not test any treatments. The goal was to gather real-world data to better understand the common medical and behavioral challenges associated with this rare genetic disorder.
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Contacts and locations
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Locations
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FROM - Research Foundation Bergamo Hospital - ETS, Bergamo, Italy
Bergamo, 24127, Italy
Conditions
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