Global effort to unlock secrets of rare childhood cancer

NCT ID NCT00700414

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study collects medical and family history from children and teens with adrenocortical tumors, a rare cancer. Researchers also study tumor samples to learn about genetic factors like the TP53 gene. The goal is to better understand the disease and improve care worldwide.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this registry could help doctors better understand and treat this rare childhood cancer, potentially improving future outcomes.

What could go wrong

This is an observational registry, not a treatment trial. It collects information but does not test any new therapy, so direct benefits to participants are unlikely.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

adrenal cortex neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • All Children's Hospital/St. Petersburg Hospital

    COMPLETED

    St. Petersburg, Florida, 33701, United States

  • Cook Children's Medical Center

    COMPLETED

    Fort Worth, Texas, 76104, United States

  • St. Jude Children's Research Hospital

    RECRUITING

    Memphis, Tennessee, 38105, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Stanford University

    COMPLETED

    Stanford, California, 94305, United States

  • The Children's Medical Center

    RECRUITING

    Dayton, Ohio, 45404, United States

    Contact

    Contact

    Contact