Better pain surveys for NF1 patients: a step toward smarter clinical trials
NCT ID NCT02544022
First seen Nov 01, 2025 · Last updated May 14, 2026 · Updated 24 times
Summary
This study aims to improve questionnaires that measure pain, daily living, and physical function in people with neurofibromatosis 1 (NF1) who have plexiform neurofibromas (pNFs). Participants aged 5 and older will provide feedback through group discussions or interviews to refine existing pain assessment tools. The goal is to create better, more accurate measures for use in future clinical trials.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for NEUROFIBROMATOSIS 1 are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Children's Hospital of Philadelphia
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
Contact Email: •••••@•••••
-
Children's National Medical Center
COMPLETEDWashington D.C., District of Columbia, 20010, United States
-
Cincinnati Children's Hospital and Medical Center Institution
COMPLETEDCincinnati, Ohio, 45229-3039, United States
-
Johns Hopkins University
ACTIVE_NOT_RECRUITINGBaltimore, Maryland, 21287, United States
-
National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-••••
-
University of Chicago
ACTIVE_NOT_RECRUITINGChicago, Illinois, 60637, United States
Conditions
Explore the condition pages connected to this study.