Scientists hunt for genetic and environmental clues in rare lung disease
NCT ID NCT04238871
First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study aimed to describe the features and natural history of idiopathic interstitial pneumopathy, a group of rare lung diseases, in both children and adults. Researchers planned to collect data from 1,600 participants, including medical history, imaging, and genetic tests, to understand how the disease starts and progresses. The study was terminated early, so results may be limited.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this could improve understanding of how these rare lung diseases develop and progress, potentially guiding future research toward better diagnosis or management.
- What could go wrong
- This is an observational study that was terminated early, so it may not provide complete data. It does not test any treatment, so direct patient benefits are unlikely.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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AP-HP - Hôpital Armand Trousseau
Paris, 75012, France
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CHU Lyon - Hôpital Louis Pradel
Bron, 69500, France
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