New hope for rare brain disorder: phase 3 trial tests potential treatment

NCT ID NCT07221292

Summary

This study aims to see if a medicine called N-Acetyl-L-Leucine (IB1001) is safe and can help improve movement, balance, and quality of life for people with rare genetic disorders caused by a CACNA1A gene mutation. About 60 participants, aged 4 and older, will take either the study medicine or a placebo for periods of 12 weeks each. Researchers will measure changes in symptoms like walking, speech, and hand coordination.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Massachusetts General Hospital

    Boston, Massachusetts, 02114, United States

  • The University of Texas Health (UT Health)

    Houston, Texas, 77030, United States

  • University Hospital Bern Inselspital

    Bern, 3010, Switzerland

  • University of Cologne

    Cologne, 50937, Germany

  • University of Giessen

    Giessen, 35389, Germany

Conditions

Explore the condition pages connected to this study.