Scientists launch global effort to unlock mysteries of rare blood disorder
NCT ID NCT03797495
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is for people with plasminogen deficiency (a rare blood disorder) and their close family members. Researchers will collect medical history and blood samples over several years to better understand how the disease develops and varies between people. No new treatments are being tested—the goal is to gather information to improve future care.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
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Alexandra Hospital, Athens, Hematology Department
RECRUITINGAthens, 11528, Greece
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Angelo Bianchi Bonomi Hemophilia and Thrombosis Center,
RECRUITINGMilan, 20122, Italy
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CHU Sainte-Justine
RECRUITINGMontreal, Quebec, H3T 1C5, Canada
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CHU de Québec Université Laval
RECRUITINGQuébec, Quebec, A0121, Canada
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Cardiff and Vale UHB
RECRUITINGCardiff, Wales, CF14 4XW, United Kingdom
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Children's Health Queensland Hospital and Health Service
RECRUITINGSouth Brisbane, QLD 4101, Australia
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Cook Children's Medical Center
RECRUITINGForth Worth, Texas, 76104, United States
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Dokuz Eylul University pediatric Pulmonology, Allergy and Clinical Immunology
ACTIVE_NOT_RECRUITINGIzmir, Balçova, 35330, Turkey (Türkiye)
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Faculty of Medicine, Chiang Mai University
RECRUITINGChiang Mai, 50200, Thailand
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Great Ormond Street Hospital for Children NHS Foundation Trust
RECRUITINGLondon, WC1N 3HR, United Kingdom
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hemophilia Center of Western Pennsylvania
RECRUITINGPittsburgh, Pennsylvania, 15213, United States
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Hospital Britanico Buenos Aires
RECRUITINGBuenos Aires, C1280, Argentina
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Indiana Hemophila @Thrombosis Center
RECRUITINGIndianapolis, Indiana, 46260, United States
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Istanbul University Cerrahpsasa, Cerrahpsasa Medical Faculty Pediatric Hematology and Oncology Department
ACTIVE_NOT_RECRUITINGIstanbul, 34098, Turkey (Türkiye)
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Istanbul Üniversitesi Onkoloji Enstitüsü
RECRUITINGIstanbul, 34093, Turkey (Türkiye)
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Medical University of Innsbruck, University Clinic for Pediatrics and Adolescent Medicine
RECRUITINGInnsbruck, A-6020, Austria
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Murdoch Children's Research Institute, The Royal Children's Hospital
RECRUITINGMelbourne, Victoria, 3052, Australia
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Ondokuz Mayıs Üniversitesi Tıp Fakültesi Pediatrik Hematoloji Bölümü
RECRUITINGSamsun, Samsun, 55200, Turkey (Türkiye)
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Royal Free Hospital, Royal Free London NHS Foundation Trust
RECRUITINGLondon, United Kingdom
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Rush University Medical Center
RECRUITINGChicago, Illinois, 60612, United States
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SUNY Upstate Medical University, Pediatric Hematology/Oncology
RECRUITINGSyracuse, New York, 13210, United States
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Safra's Children Hospital, Sheba Medical Center
RECRUITINGTel Aviv, Israel
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Seattle Children's Hospital
RECRUITINGSeattle, Washington, 98105-3901, United States
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Stony Brook University | Stony Brook Medicine
RECRUITINGEast Setauket, New York, 11733, United States
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The University of Alabama (UAB)
RECRUITINGBirmingham, Alabama, 35233, United States
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The University of Texas Health Science Center at Houston
COMPLETEDHouston, Texas, 77030, United States
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Uludag University, Medical Faculty Sebahattin Gazioğlu, Pediatric Hematology and Oncology Hospital
RECRUITINGBursa, Bursa, 16059, Turkey (Türkiye)
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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University Hospital of Padova
RECRUITINGPadua, 35100, Italy
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University of Minnesota, Pediatric Hem/Onc & Cancer Survivorship Program
RECRUITINGMinneapolis, Minnesota, 55455, United States
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University of North Carolina at Chapel Hill
RECRUITINGRaleigh, North Carolina, 27599, United States
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University of Saskatchewan
RECRUITINGSaskatoon, SK S7N 0W8, Canada
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Vanderbilt Children's Hematology-Oncology
COMPLETEDNashville, Tennessee, 37232, United States
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Wake Forest University
RECRUITINGWinston-Salem, North Carolina, 27157, United States
Contact
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Windsor Regional Hospital
RECRUITINGWindsor, Ontario, N8W 1L9, Canada
Contact
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Yuzuncu Yil University Faculty of Medicine Department of Ophthalmology
RECRUITINGVan, 65040, Turkey (Türkiye)
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