Scientists launch global effort to unlock mysteries of rare blood disorder

NCT ID NCT03797495

Recruiting now Knowledge-focused Sponsor: Indiana Hemophilia &Thrombosis Center, Inc. Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is for people with plasminogen deficiency (a rare blood disorder) and their close family members. Researchers will collect medical history and blood samples over several years to better understand how the disease develops and varies between people. No new treatments are being tested—the goal is to gather information to improve future care.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Get updates

Get notified about this study

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

hypoplasminogenemia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

PLASMINOGEN DEFICIENCY

Contacts and locations

Locations

Alexandra Hospital, Athens, Hematology Department
RECRUITING

Athens, 11528, Greece
Angelo Bianchi Bonomi Hemophilia and Thrombosis Center,
RECRUITING

Milan, 20122, Italy
CHU Sainte-Justine
RECRUITING

Montreal, Quebec, H3T 1C5, Canada
CHU de Québec Université Laval
RECRUITING

Québec, Quebec, A0121, Canada
Cardiff and Vale UHB
RECRUITING

Cardiff, Wales, CF14 4XW, United Kingdom
Children's Health Queensland Hospital and Health Service
RECRUITING

South Brisbane, QLD 4101, Australia
Cook Children's Medical Center
RECRUITING

Forth Worth, Texas, 76104, United States
Dokuz Eylul University pediatric Pulmonology, Allergy and Clinical Immunology
ACTIVE_NOT_RECRUITING

Izmir, Balçova, 35330, Turkey (Türkiye)
Faculty of Medicine, Chiang Mai University
RECRUITING

Chiang Mai, 50200, Thailand
Great Ormond Street Hospital for Children NHS Foundation Trust
RECRUITING

London, WC1N 3HR, United Kingdom
Hemophilia Center of Western Pennsylvania
RECRUITING

Pittsburgh, Pennsylvania, 15213, United States
Hospital Britanico Buenos Aires
RECRUITING

Buenos Aires, C1280, Argentina
Indiana Hemophila @Thrombosis Center
RECRUITING

Indianapolis, Indiana, 46260, United States
Istanbul University Cerrahpsasa, Cerrahpsasa Medical Faculty Pediatric Hematology and Oncology Department
ACTIVE_NOT_RECRUITING

Istanbul, 34098, Turkey (Türkiye)
Istanbul Üniversitesi Onkoloji Enstitüsü
RECRUITING

Istanbul, 34093, Turkey (Türkiye)
Medical University of Innsbruck, University Clinic for Pediatrics and Adolescent Medicine
RECRUITING

Innsbruck, A-6020, Austria
Murdoch Children's Research Institute, The Royal Children's Hospital
RECRUITING

Melbourne, Victoria, 3052, Australia
Ondokuz Mayıs Üniversitesi Tıp Fakültesi Pediatrik Hematoloji Bölümü
RECRUITING

Samsun, Samsun, 55200, Turkey (Türkiye)
Royal Free Hospital, Royal Free London NHS Foundation Trust
RECRUITING

London, United Kingdom
Rush University Medical Center
RECRUITING

Chicago, Illinois, 60612, United States
SUNY Upstate Medical University, Pediatric Hematology/Oncology
RECRUITING

Syracuse, New York, 13210, United States
Safra's Children Hospital, Sheba Medical Center
RECRUITING

Tel Aviv, Israel
Seattle Children's Hospital
RECRUITING

Seattle, Washington, 98105-3901, United States
Stony Brook University | Stony Brook Medicine
RECRUITING

East Setauket, New York, 11733, United States
The University of Alabama (UAB)
RECRUITING

Birmingham, Alabama, 35233, United States
The University of Texas Health Science Center at Houston
COMPLETED

Houston, Texas, 77030, United States
Uludag University, Medical Faculty Sebahattin Gazioğlu, Pediatric Hematology and Oncology Hospital
RECRUITING

Bursa, Bursa, 16059, Turkey (Türkiye)
University Hospital of Padova
RECRUITING

Padua, 35100, Italy
University of Minnesota, Pediatric Hem/Onc & Cancer Survivorship Program
RECRUITING

Minneapolis, Minnesota, 55455, United States
University of North Carolina at Chapel Hill
RECRUITING

Raleigh, North Carolina, 27599, United States
University of Saskatchewan
RECRUITING

Saskatoon, SK S7N 0W8, Canada
Vanderbilt Children's Hematology-Oncology
COMPLETED

Nashville, Tennessee, 37232, United States
Wake Forest University
RECRUITING

Winston-Salem, North Carolina, 27157, United States
Windsor Regional Hospital
RECRUITING

Windsor, Ontario, N8W 1L9, Canada
Yuzuncu Yil University Faculty of Medicine Department of Ophthalmology
RECRUITING

Van, 65040, Turkey (Türkiye)