A rare bleeding disorder under the microscope: what can a patient registry reveal?
NCT ID NCT01761981
First seen Jul 30, 2026 · Last updated Jul 31, 2026 · Updated 1 time
Summary
This study creates a detailed registry of people with hereditary hemorrhagic telangiectasia (HHT), a condition that causes abnormal blood vessels and bleeding. Researchers will track participants over time to collect information on symptoms, treatments, and disease progression. The goal is to better understand how HHT affects patients and to identify patterns that could improve future care.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this registry could provide a clearer picture of how HHT progresses and what factors influence outcomes, potentially guiding future treatments.
- What could go wrong
- As an observational registry, this study does not test any new treatment, so it will not directly improve care. Results depend on consistent data collection and may not apply to all HHT patients.
This is an AI summary of the original study and may miss details. Read our disclaimer.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Hospital Italiano de Buenos Aires
RECRUITINGBuenos Aires, Buenos Aires, 1081, Argentina