Patients and doctors share views on new gene therapy for bleeding disorder
NCT ID NCT05044845
Summary
This study surveyed 150 hemophilia B patients, their caregivers, and healthcare workers worldwide to understand what they know and think about gene therapy. Researchers conducted interviews to learn about people's attitudes, concerns, and how they prefer to receive information about this new treatment. The goal is to create better educational materials to help patients make informed decisions about gene therapy, especially in countries with limited medical resources.
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Contacts and locations
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Locations
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Civil Service Hospital
Kathmandu, Nepal
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Hospital Dos De Mayo
Lima, Peru
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National Hospital of Sri Lanka
Colombo, 01000, Sri Lanka
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National Institute of Hematology and Blood Transfusion
Hanoi, Vietnam
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Ramathibodi Hospital
Bangkok, 10400, Thailand
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St. Jude Children's Research Hospital
Memphis, Tennessee, 38105, United States
Conditions
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