Smartphone diaries reveal hidden toll of rare swelling disease
NCT ID NCT07448181
First seen Mar 07, 2026 · Last updated May 10, 2026 · Updated 8 times
Summary
This study tracks 30 adults with hereditary angioedema (HAE) using daily smartphone surveys for 8 weeks. The goal is to capture the real-time emotional, social, and physical burden of the disease, which may be missed by standard questionnaires. Participants answer questions about their mood, daily activities, and symptoms to provide a clearer picture of life with HAE.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Istituti Clinici Scientifici Maugeri, Milan, Milan 20138
RECRUITINGMilan, 20138, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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