Breakthrough treatment shows promise for rare genetic disorder

NCT ID NCT06415344

Summary

This study continues testing GTX-102, an experimental treatment for Angelman Syndrome, to understand its long-term safety and effectiveness. It's open only to people who completed earlier GTX-102 trials. Researchers will monitor side effects and track developmental progress over time to see if the treatment helps control symptoms of this rare genetic condition.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • AP-HM - Hopital de la Timone

    Marseille, 13385, France

  • AP-HP Hopital Necker-Enfants Malades

    Paris, 75015, France

  • Boston Children's Hospital

    Boston, Massachusetts, 02115, United States

  • British Columbia Children's Hospital

    Vancouver, British Columbia, V6H 3V4, Canada

  • Childrens Hospital London Health Sciences Centre

    London, Ontario, N6A 5W9, Canada

  • Childrens Hospital of Eastern Ontario

    Ottawa, Ontario, K1H 8L1, Canada

  • Corporacio Sanitaria Parc Tauli - Hospital de Sabadell

    Sabadell, 08208, Spain

  • Great Ormond Street Hospital for Children

    London, WC1N 3JH, United Kingdom

  • Hospital Universitario Puerta de Hierro

    Majadahonda, 28222, Spain

  • MAGIC Clinic Ltd

    Calgary, Alberta, T2E 7Z4, Canada

  • Oxford University Hospitals NHS Foundation Trust

    Oxford, OX3 9DU, United Kingdom

  • Queensland Children's Hospital

    South Brisbane, Queensland, 4101, Australia

  • Rare Disease Research, LLC

    Atlanta, Georgia, 30329, United States

  • Rush University Medical Center

    Chicago, Illinois, 60612, United States

  • Sheba Medical Center

    Ramat Gan, 5265601, Israel

  • The Research Institute of the McGill University Health Centre

    Montreal, Quebec, H3G 1A4, Canada

  • The Royal Children's Hospital

    Melbourne, Victoria, 3052, Australia

  • Universitaetsklinikum Hamburg-Eppendorf

    Hamburg, 20246, Germany

  • Universitaetsklinikum Leipzig

    Leipzig, 04103, Germany

  • University of California, Los Angeles (UCLA)

    Los Angeles, California, 90095, United States

  • University of California, San Diego - Rady Children's Hospital

    San Diego, California, 92123, United States

  • University of Cambridge

    Cambridge, CB2 0QQ, United Kingdom

  • Weill Cornell Medicine

    New York, New York, 10021, United States

Conditions

Explore the condition pages connected to this study.