Experimental gene therapy for rare muscular dystrophy shows early promise but study halted

NCT ID NCT03652259

First seen Nov 01, 2025 · Last updated May 13, 2026 · Updated 26 times

Summary

This study tested a gene therapy called SRP-9003 for people with limb-girdle muscular dystrophy type 2E, a rare genetic muscle-weakening disease. Six participants received a one-time infusion to deliver a working copy of the missing gene. The study was terminated early, so final results are limited, but researchers looked at safety and whether the therapy could increase protein levels in muscle.

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Contacts and locations

Locations

  • Nationwide Children's Hospital

    Columbus, Ohio, 43205, United States

Conditions

Explore the condition pages connected to this study.