Gene hunt: could DNA testing shorten the wait for answers in infant epilepsy?

NCT ID NCT06701084

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study aims to find new genetic causes of epilepsy in infants whose seizures start before 12 months of age. Researchers will analyze the DNA of 600 babies to see if a genetic diagnosis can be made and how that affects medical care and family well-being. The goal is to shorten the time to diagnosis and improve understanding of these early-life epilepsies.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

Genomic sequencing

What this could lead to

If successful, this could improve early genetic diagnosis for infant epilepsy, guiding treatment and family counseling.

What could go wrong

This is an observational study, not a treatment trial. It may not directly change outcomes, and genetic findings may not always be actionable.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for NEONATAL EPILEPSY are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

infantile epilepsy syndrome infantile-onset epilepsy neonatal epilepsy syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Boston Children's Hospital

    RECRUITING

    Boston, Massachusetts, 02115, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••