Massive study maps the journey of a rare neurological disease
NCT ID NCT02069509
Summary
This study created a large registry to track the natural progression of Friedreich's Ataxia over time. It followed 1,200 participants with the condition, collecting annual health data and biological samples. The goal was to understand how the disease develops and to gather information that will help design and improve future treatment trials.
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Contacts and locations
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Locations
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Bambino Gesù Children's Hospital, Department of Neurosciences
Roma, 00146, Italy
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Fondazione IRCCS Istituto Neurologico Carlo Besta
Milan, 20133, Italy
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Hospital Sant Joan de Déu, Servicio de Neurología
Barcelona, 08950, Spain
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Hospital Universitario La Paz, Servicio de Neurologia
Madrid, 28046, Spain
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Hôpital Pitié Salpêtrière, Bâtiment ICM
Paris, 75013, France
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Hôpital de Hautepierre, Service de Neurologie
Strasbourg, 67098, France
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Medical University Innsbruck, Department of Neurology
Innsbruck, 6020, Austria
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Motol University Hospital, Centre for Hereditary Ataxias
Prague, 150 06, Czechia
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National and Kapodistrian University of Athens, Neurogenetics Unit
Athens, 11528, Greece
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Tallaght University Hospital, Department of Neurology
Dublin, D24 TP66, Ireland
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University College of London, Ataxia Centre, National Hospital for Neurology and Neurosurgery
London, WC1N 3 BG, United Kingdom
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University Hospital Aachen, Dept. of Neurology
Aachen, 52074, Germany
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University Hospital Bonn, Dept. of Neurology
Bonn, 53105, Germany
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University of Munich, Dept. of Neurology, Friedrich-Baur-Institut
Munich, 80336, Germany
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University of Tübingen, Dept. of Neurodegenerative Diseases, Hertie-Institute for Clinical Brain Research
Tübingen, 72076, Germany
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Université Libre de Bruxelles, Hôpital Erasme, Dpt of Neurology
Brussels, 1070, Belgium
Conditions
Explore the condition pages connected to this study.