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Scientists track Real-Time impact of rare neurological disease

NCT ID NCT05943002

Recruiting now Knowledge-focused Sponsor: German Center for Neurodegenerative Diseases (DZNE) Source: ClinicalTrials.gov ↗

Summary

This study aims to better understand how Friedreich Ataxia affects people's daily lives, quality of life, and creates financial burdens. It will observe 200 patients in Germany, Austria, and France. Participants will complete an initial interview and then use a smartphone app to report on their experiences regularly for six months.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Department of Neurology, RWTH Aachen University

    RECRUITING

    Aachen, 52074, Germany

    Contact Email: •••••@•••••

  • Friedrich-Baur-Institut an der Neurologischen Klinik und Poliklinik

    RECRUITING

    Münich, 80336, Germany

    Contact Email: •••••@•••••

  • German Center for Neuro-degenerative Diseases (DZNE)

    RECRUITING

    Bonn, 53127, Germany

    Contact Email: •••••@•••••

    Contact

    Contact Email: •••••@•••••

  • Klinik für Neurologie, Medizinische Universität Innsbruck

    RECRUITING

    Innsbruck, 6020, Austria

    Contact Email: •••••@•••••

  • Neurologische Klinik und Hertie-Institut für Klinische Hirnforschung, Universitätsklinik Tübingen

    NOT_YET_RECRUITING

    Tübingen, 72076, Germany

    Contact Email: •••••@•••••

  • Paris Brain Institute

    RECRUITING

    Paris, 75013, France

    Contact Email: •••••@•••••

    Contact Email: •••••@•••••

    Contact

Conditions

Explore the condition pages connected to this study.

FRIEDREICH ATAXIA