French researchers validate SMA independence survey
NCT ID NCT07321990
Summary
This study aims to check if a French version of a Spinal Muscular Atrophy (SMA) questionnaire gives consistent results over time. 60 French-speaking adults with SMA will fill out the same survey about their daily activities during a routine visit and again two weeks later. The goal is to create a reliable French tool that doctors and researchers can use to better understand how SMA affects patients' independence.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Association institut de Myologie
RECRUITINGParis, 75013, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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