Four-Year safety check for promising fragile x drug begins
NCT ID NCT05367960
Summary
This is a four-year follow-up study for adolescent and adult males with Fragile X Syndrome who have already taken the investigational drug BPN14770 in earlier trials. The main goal is to check the long-term safety and side effects of the drug. Researchers will also track changes in participants' thinking skills, daily function, and behavior over time.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Amnova Clinical Research
Irvine, California, 92604, United States
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Boston Children's Hospital
Boston, Massachusetts, 02115, United States
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Children's Hospital Colorado
Aurora, Colorado, 80045, United States
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Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, 45229, United States
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Clinic for Special Children
Strasburg, Pennsylvania, 17579, United States
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Emory University School of Medicine
Atlanta, Georgia, 30322, United States
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Greenwood Genetic Center
Greenville, South Carolina, 29605, United States
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Icahn School of Medicine at Mount Sinai
New York, New York, 10029, United States
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Kennedy Krieger Institute
Baltimore, Maryland, 21205, United States
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MIND Institute UC Davis Medical Center
Sacramento, California, 95817, United States
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Rush University Medical Center
Chicago, Illinois, 60612, United States
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Suburban Research Associates
Media, Pennsylvania, 19063, United States
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Thompson Autism & Neurodevelopment Center - CHOC
Orange, California, 92828, United States
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U Mass
Worcester, Massachusetts, 01655, United States
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University of Kansas Medical Center
Kansas City, Kansas, 66160, United States
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University of Miami
Miami, Florida, 33136, United States
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University of Utah and Primary Children's Hospital
Salt Lake City, Utah, 84113, United States
Conditions
Explore the condition pages connected to this study.