Pioneering fetal brain surgery aims to save newborns from deadly malformation

NCT ID NCT07483255

First seen Apr 03, 2026 · Last updated Apr 25, 2026 · Updated 3 times

Summary

This study tests a one-time procedure done before birth to treat a rare brain blood vessel problem called vein of Galen malformation. About 20 fetuses at 34 weeks or later will receive the treatment, and their health will be checked every 6 months for 2 years after birth. The goal is to see if this early treatment lowers the risk of death in the first month of life compared to past cases.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for VEIN OF GALEN MALFORMATIONS are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Boston Children's Hospital

    Boston, Massachusetts, 02115, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.