Study tracks hidden time costs of fabry treatment
NCT ID NCT04281537
First seen Feb 05, 2026 · Last updated May 15, 2026 · Updated 14 times
Summary
This study looked at how much time healthcare professionals spend preparing and giving enzyme replacement therapy to adults with Fabry disease, and how the treatment affects patients and their caregivers. Researchers measured tasks like setting up the infusion and checking on patients, as well as quality of life and work productivity. The goal was to understand the real-world burden of this routine treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Amicus Therapeutics, Inc.
Philadelphia, Pennsylvania, 19104, United States
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Dokuz Eylul University Medical Faculty
Izmir, Turkey (Türkiye)
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Ege University Hospital
Izmir, Turkey (Türkiye)
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Gazi University Hospital
Ankara, Turkey (Türkiye)
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Instituto de Genética e Erros Inatos do Metabolismo (IGEIM)
São Paulo, Brazil
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Keio University Hospital
Tokyo, Japan
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National Taiwan University
Taipei, Taiwan
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Taipei Veterans General Hospital
Taipei, Taiwan
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Yokohama Municipal Citizen's Hospital
Yokohama, Japan
Conditions
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