Scientists track daily life to unlock clues for rare disease
NCT ID NCT06484478
Summary
This study aimed to better understand the daily lives of people with Fabry disease, a rare genetic condition. Researchers observed 100 UK adults with the disease for one week using a thigh-worn activity tracker and questionnaires. The goal was to learn how physical activity, sleep, and mental health relate to their quality of life.
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Contacts and locations
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Locations
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Royal Free London NHS Foundation Trust
London, United Kingdom
Conditions
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