New study tracks Fabhalta's Real-World safety for rare blood and kidney diseases

NCT ID NCT07416162

First seen Feb 19, 2026 · Last updated May 04, 2026 · Updated 6 times

Summary

This study is a post-marketing surveillance of Fabhalta (iptacopan) in Korean adults with paroxysmal nocturnal hemoglobinuria (PNH) or C3 glomerulopathy (C3G). It aims to track side effects and how well the drug works in everyday medical practice. About 21 participants will be observed, and data will be collected from their medical records. This is not a cure but a way to ensure the drug is safe and effective for long-term disease control.

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