New drug aims to give sunlight back to people with debilitating light sensitivity
NCT ID NCT05883748
Summary
This study is testing the long-term safety and effectiveness of an experimental drug called bitopertin for people with erythropoietic protoporphyria (EPP), a rare disorder that causes severe, painful reactions to sunlight. The research will monitor side effects and see if the drug helps people spend more time in the sun without pain. It is open to people aged 12 and older who have already taken part in a previous bitopertin study.
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Contacts and locations
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Locations
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Atrium Health Wake Forest Baptist
Winston-Salem, North Carolina, 27157, United States
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Einstein Medical Center
Philadelphia, Pennsylvania, 19141, United States
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Fred Hutchinson Cancer Center
Seattle, Washington, 98109, United States
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Massachusetts General Hospital
Boston, Massachusetts, 02114, United States
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MetroBoston Clinical Partners
Boston, Massachusetts, 02135, United States
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Mount Sinai Hospital
New York, New York, 10029, United States
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Remington-Davis Clinical Research
Columbus, Ohio, 43215, United States
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Royal Prince Alfred Hospital
Camperdown, New South Wales, 2050, Australia
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The Royal Melbourne Hospital
Parkville, Victoria, 3050, Australia
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University of Alabama Hospital
Birmingham, Alabama, 35233, United States
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University of California San Francisco
San Francisco, California, 94117, United States
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University of Miami Miller School of Medicine
Miami, Florida, 33136, United States
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University of Texas
Galveston, Texas, 77550, United States
Conditions
Explore the condition pages connected to this study.