New hope for babies with rare seizure disorder: drug trial targets SCN2A gene
NCT ID NCT07019922
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study tests a medicine called elsunersen in 40 children with a rare, severe form of epilepsy caused by changes in the SCN2A gene. The goal is to see if the drug can safely reduce how often seizures happen over 24 weeks. Children must have started having seizures before 3 months old and have at least 4 seizures per month to join.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Praxis Research Site
RECRUITINGSan Diego, California, 92123, United States
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Praxis Research Site
RECRUITINGAurora, Colorado, 80045, United States
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Praxis Research Site
RECRUITINGChicago, Illinois, 60612, United States
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Praxis Research Site
RECRUITINGCincinnati, Ohio, 45229, United States
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Praxis Research Site
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
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Praxis Research Site
RECRUITINGMemphis, Tennessee, 38105, United States
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Praxis Research Site
WITHDRAWNPorto Alegre, 90035, Brazil
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Praxis Research Site
WITHDRAWNSão Paulo, 05403, Brazil
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Praxis Research Site
RECRUITINGBonn, Bonn, 53127, Germany
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Praxis Research Site
RECRUITINGRome, 00165, Italy