New registry aims to track rare histiocytosis diseases over time
NCT ID NCT03329274
First seen Nov 01, 2025 · Last updated May 06, 2026 · Updated 26 times
Summary
This study creates a registry for up to 500 people with Erdheim-Chester disease and other histiocytoses. Researchers will collect medical information and patient experiences to learn how these diseases progress and respond to treatments. Some participants may also be asked to complete a phone interview.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-••••
Locations
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Memorial Sloan Kettering Cancer Center
RECRUITINGNew York, New York, 10065, United States
Contact
Contact Phone: •••-•••-••••
Contact Phone: •••-•••-••••
Conditions
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