Dragonfly study aims to unlock mysteries of rare genetic condition
NCT ID NCT07167732
First seen Nov 01, 2025 · Last updated May 16, 2026 · Updated 24 times
Summary
This study follows 250 children and adults with CTNNB1 neurodevelopmental syndrome to track their mental, physical, and social development over time. By collecting data through assessments and questionnaires, researchers hope to better understand the condition and improve care. The study does not test any treatment but aims to lay the groundwork for future clinical trials.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Sydney Children's Hospital
NOT_YET_RECRUITINGSydney, Australia
Contact
Contact Email: •••••@•••••
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University Medical Centre Ljubljana
RECRUITINGLjubljana, 1000, Slovenia
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
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