New HAE drug shows promise in Long-Term safety trial
NCT ID NCT04307381
First seen May 14, 2026 · Last updated May 15, 2026 · Updated 1 time
Summary
This study looked at the long-term safety and effectiveness of a drug called donidalorsen for people with hereditary angioedema (HAE), a condition that causes sudden, severe swelling. Twenty adults who had already completed an earlier study received the drug as a shot under the skin for up to 64 weeks. The main goal was to see if the drug was safe over time, and researchers also tracked how well it controlled swelling attacks.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for HEREDITARY ANGIOEDEMA are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
Ionis Investigative Site
Scottsdale, Arizona, 85251, United States
-
Ionis Investigative Site
Santa Monica, California, 90404, United States
-
Ionis Investigative Site
Plymouth, Minnesota, 55446, United States
-
Ionis Investigative Site
Cincinnati, Ohio, 45231, United States
-
Ionis Investigative Site
Hershey, Pennsylvania, 17033, United States
-
Ionis Investigative Site
Dallas, Texas, 75231, United States
-
Ionis Investigative Site
Amsterdam, 1105 AZ, Netherlands
Conditions
Explore the condition pages connected to this study.