500 chinese patients join study to unlock secrets of rare muscle disease
NCT ID NCT06101940
First seen Nov 01, 2025 · Last updated May 14, 2026 · Updated 29 times
Summary
This study aims to collect health and genetic information from 500 Chinese adults with myotonic dystrophy type 1 (DM1), a rare inherited muscle disorder. Researchers will measure walking speed and daytime sleepiness to see how the disease affects daily life. The goal is to better understand DM1 in people of Chinese Han ethnicity, since most existing data comes from other populations.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Chifeng Municipal Hospital
Chifeng, Neimenggu, China
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Children's Hospital of Fudan University
Shanghai, Shanghai Municipality, China
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Chinese People's Liberation Army General Hospital
Beijing, Beijing Municipality, China
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First Affiliated Hospital of Chongqing Medical University
Chongqing, Chongqing Municipality, China
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First Hospital of Shanxi Medical University
Taiyuan, Shanxi, China
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Fujian Medical University Union Hospital
Fuzhou, Fujian, China
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Huashan Hospital
Shanghai, 200040, China
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Peking University First Hospital
Beijing, Beijing Municipality, China
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Qilu Hospital of Shandong University
Jinan, Shandong, China
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Sichuan Provincial People's Hospital
Chengdu, Sichuan, China
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Southern Hospital of Southern Medical University
Guangzhou, Guangdong, China
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The First Affiliated Hospital of Nanchang University）
Nanchang, Jiangxi, China
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The First Affiliated Hospital of Soochow University
Suzhou, Jiangsu, China
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The First Bethune Hospital of Jilin University
Changchun, Jilin, China
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The First People's Hospital of Yancheng
Yancheng, Jiangsu, China
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The General Hospital of Western Theater Command
Chengdu, Sichuan, China
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The Third Hospital of Hebei Medical University
Shijiazhuang, Hebei, China
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Wuhan University People's Hospital
Wuhan, Hubei, China
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Xi'an Gaoxin Hospital
Xi’an, Shanxi, China
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Xi'an People's Hospital
Xi’an, Shanxi, China
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Yunnan Provincial People's Hospital
Kunming, Yunnan, China
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Zhongda Hospital Southeast University
Nanjing, Jiangsu, China
Conditions
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