New ointment could ease painful blisters for kids and adults with rare skin disease

NCT ID NCT06073132

First seen Nov 01, 2025 · Last updated May 17, 2026 · Updated 32 times

Summary

This study tests an ointment called diacerein 1% for people with a rare genetic skin condition called generalized epidermolysis bullosa simplex (EBS), which causes fragile skin and painful blisters. About 80 participants aged 6 months and older will receive either the ointment or a placebo for several weeks, and then all may receive the active ointment in an open-label extension. The goal is to see if the ointment reduces blistering and pain.

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Contacts and locations

Locations

  • Asian Hospital

    City of Muntinlupa, Philippines

  • Children's Health Ireland

    Dublin, Ireland

  • Children's Hospital Colorado

    Aurora, Colorado, 80045, United States

  • Cincinnati Childrens Hospital

    Cincinnati, Ohio, 45229, United States

  • Dermatology Hospital of Southern Medical University

    Guangzhou, Guangdong, China

  • Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico Milano

    Milan, Italy

  • Gangnam Severane Hospital

    Seoul, South Korea

  • Great Ormond Street Hospital (GOSH) for Children NHS Foundation Trust - Somers Clinical Research Facility (CRF)

    London, United Kingdom

  • Health Cube Medical Clinics

    Mandaluyong, Philippines

  • Hospital Tunku Azizah (Hospital Wanita Dan Kanak-kanak Kuala Lumpur)

    Kuala Lumpur, Malaysia

  • Hospital Universitario La Paz

    Madrid, Spain

  • Hospital of Skin and Venereal Diseases of Thessaloniki

    Thessaloniki, Greece

  • Iloilo Doctors Hospital

    Iloilo City, Philippines

  • Istituto Dermopatico dell'Immacolata (IDI) - Istituto di

    Rome, Italy

  • Medical University of South Carolina

    Charleston, South Carolina, 29425, United States

  • Mission dermatology Center

    Rancho Santa Margarita, California, 92688, United States

  • National Cheng Kung University Hospital

    Tainan, Taiwan

  • Northwestern University - Lurie Childrens's Hospital

    Chicago, Illinois, 60611, United States

  • OT.CO Clinic Osipowicz & Turkowski

    Warsaw, Poland

  • Postgraduate Institute of Medical Education and Research (PGIMER)

    Chandigarh, India

  • Premier Specialists

    Kogarah, Australia

  • Sheikh Khalifa Medical City (SKMC)

    Abu Dhabi, United Arab Emirates

  • Stanford University

    Stanford, California, 94304, United States

  • Sydney Children's Hospital

    Randwick, Australia

  • Tel Aviv Sourasky Medical Center

    Tel Aviv, Israel

  • Texas Dermatology and Laser Specialists

    San Antonio, Texas, 78218, United States

  • UOS "Centro delle Dermatosi Croniche Complesse e Genodermatosi" UOC Dermatologia

    Rome, Italy

  • UZ Leuven

    Leuven, Belgium

  • Universitaetsklinik fuer Dermatologie und Allergologie

    Salzburg, Austria

  • Università degli Studi di Modena e Reggio Emilia (UNIMORE)

    Modena, Italy

Conditions

Explore the condition pages connected to this study.