New study offers online coaching to moms of kids with rare muscle disease
NCT ID NCT07547189
First seen Apr 30, 2026 · Last updated May 23, 2026 · Updated 2 times
Summary
This study looks at whether a 12-week online program can help mothers of toddlers (12-36 months old) with spinal muscular atrophy (SMA) type 1 learn more about child development and improve their child's skills. The program includes weekly 90-minute sessions. Researchers will measure changes in the children's development and the mothers' knowledge. The study involves 13 mothers and their children, all of whom are already receiving medication for SMA.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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ISTANBUL MEDIPOL UNIVERSITY - Department of Child Development
Istanbul, Beykoz, Turkey (Türkiye)
Conditions
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