Desmoid tumor study: just watching and waiting

NCT ID NCT04281381

First seen May 15, 2026 · Last updated May 15, 2026

Summary

This study follows 100 people with desmoid-type fibromatosis (a type of non-cancerous tumor) for 12 months to see how the disease progresses without any active treatment. Participants receive regular scans and check-ups. The goal is to understand the natural course of the disease and when treatment might be needed.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Memorial Sloan Kettering Cancer Center

    RECRUITING

    New York, New York, 10065, United States

    Contact Phone: •••-•••-••••

Conditions

Explore the condition pages connected to this study.