Massive study aims to unlock secrets of rare gynecologic conditions in kids and teens

NCT ID NCT04717349

First seen Nov 01, 2025 · Last updated May 05, 2026 · Updated 27 times

Summary

This study collects medical information, blood, saliva, and tissue samples from up to 11,000 children, teens, and adults with known or suspected gynecologic conditions. The goal is to create a large database to help doctors and researchers better understand these conditions, how they develop, and how they affect patients over time. Participants and their family members can join, and no new treatments are being tested.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.