Scientists track rare genetic heart disease to find better treatments
NCT ID NCT06214507
Summary
This study aims to understand how Danon disease, a rare and severe genetic heart condition, progresses over time in patients. Researchers will collect medical information from about 60 male and female patients, both from their past records and by following them forward. The goal is to gather detailed data on symptoms, heart function, and quality of life to better understand the disease and help design future treatments.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Azienda Ospedaliero Universitaria
RECRUITINGFlorence, 50139, Italy
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Children's Hospital Colorado
RECRUITINGAurora, Colorado, 80045, United States
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Columbia University Medical Center/New York Presbyterian
RECRUITINGNew York, New York, 10032, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Contact Email: •••••@•••••
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German Heart Center Munich
RECRUITINGMünchen, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospital Universitario Puerta de Hierro Majadahonda
RECRUITINGMajadahonda, Madrid, Spain
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Phoenix Children's Hospital
RECRUITINGPhoenix, Arizona, 85016, United States
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Sheba Medical Center
RECRUITINGRamat Gan, 5265601, Israel
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Texas Children's Hospital
RECRUITINGHouston, Texas, 77030, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University College London - Great Ormond Street Institute of Child Health
RECRUITINGLondon, WC1N 1DZ, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of California, San Diego
RECRUITINGLa Jolla, California, 92037, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Florida College of Medicine
RECRUITINGGainesville, Florida, 32610, United States
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University of Michigan
RECRUITINGAnn Arbor, Michigan, 48109, United States
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Contact Email: •••••@•••••
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Washington University
RECRUITINGSt Louis, Missouri, 63110, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.