Smartphone study tracks hidden daily struggle of rare swelling disorder

NCT ID NCT07448181

Summary

This study aims to better understand how hereditary angioedema affects patients' daily lives by tracking their experiences in real time. Over 8 weeks, 30 adult participants will use their smartphones to answer brief daily surveys about their mood, stress, and how the disease impacts their activities. Researchers hope this real-time tracking will provide a more accurate picture than traditional questionnaires that rely on memory.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for HEREDITARY ANGIOEDEMA WITH C1 ESTERASE INHIBITOR DEFICIENCY are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Locations

  • Istituti Clinici Scientifici Maugeri, Milan, Milan 20138

    RECRUITING

    Milan, 20138, Italy

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.